Day 3, settling in: I can hardly believe it has only been 3 days. It feels like we have been doing this for a long time. Today the kids and I explored the grounds a little and found a wonderful indoor playroom, we were blessed with a fun continental type breakfast and a brown bag lunch, Crystal was able to be with Olivia twice earlier today and her and Justus are with her now. Papa Erik came to visit so he and the kids and I made a trip to Costco, life is starting to look familiar.
The playroom here is AWESOME!Olivia is doing well considering, she has been able to keep her body tempature up on her own today so the heating element has been turned off. Her white count is up just a little so she is on antibiotics as a precaution, but she is resting well nowThe big meeting with her team of doctors was today and it went just as we all had expected which is good, there were no new surprises, Olivia has HypoPlastic Left Heart or a variation of that because every case is a little different. She wil need the Norwood surgery within a week, they are waiting because of the elevated white count, and then the two other surgeries at about 5 months and 3 years. All of this is what we were first told.The road ahead is now laid out, Olivia's recovery from this first surgery will be from four to six weeks, Praise the Lord for this place to live.For now, Crystal and Justus can see her a lot, most days they can hold her and most of the NIC U nurses are very helpful, (of course there is always that one). Olivia has a wonderful social worker(patient advocate) who is so helpful, she was even at the big meeting today.Once again I thank all of you for your prayers and support.
The playroom here is AWESOME!Olivia is doing well considering, she has been able to keep her body tempature up on her own today so the heating element has been turned off. Her white count is up just a little so she is on antibiotics as a precaution, but she is resting well nowThe big meeting with her team of doctors was today and it went just as we all had expected which is good, there were no new surprises, Olivia has HypoPlastic Left Heart or a variation of that because every case is a little different. She wil need the Norwood surgery within a week, they are waiting because of the elevated white count, and then the two other surgeries at about 5 months and 3 years. All of this is what we were first told.The road ahead is now laid out, Olivia's recovery from this first surgery will be from four to six weeks, Praise the Lord for this place to live.For now, Crystal and Justus can see her a lot, most days they can hold her and most of the NIC U nurses are very helpful, (of course there is always that one). Olivia has a wonderful social worker(patient advocate) who is so helpful, she was even at the big meeting today.Once again I thank all of you for your prayers and support.
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