Olivia has HLHS the diagnosis was confirmed.
Yesterday Crystal and Justus saw the specialist
in San Diego, he did an echo cardiogram and confirmed.
So away we go. We weren't caught completely of guard,
this was the diagnosis after her last ultrasound but
I was hoping it had all been a terrible mistake and
the "specialist" would straighten everything out.
He didn't. He was very helpful to Crystal, very
i
nformative and encouraging but Olivia still has HLHS and we are still going to have to deal with it. How do we do that? It seems so big.
Today when I was talking to Crystal she reminded me, we're runners, we've run races together, we know how to train! Yes that's it, I need to start training. Last year Crystal and I ran, and finished, the Disney half marathon, 13.1 miles. Yes We Did! But to get there we had to run the Sun City 5k and the La Cresta 10k, and miles and miles in between, we trained...
Training for a run is not just running, it is actually mostly in you mind. (after Disney my quads would beg to differ) I subscribe to running magazines and running forums and running groups and..... yes I need a lot of encouragement, but once I get going its all great, in fact I love it, I love running through the pain, it gives me a feeling like no other, a feeling of strength.
So today I started training for Olivia, I went on the Internet and pursued knowledge, not like last week when I was so sad and scared but like a participant in this event. Yes it was a little painful but now I feel stronger, I know the terrain, as it were, of this event, I know how to train, we won't be running on flat streets for this one, this is an all out mud run. I need to be a strong partner for Crystal so I can encourage her when she is tired and weak. Just like the half marathon, when your so tired and wanting to quit someone calls your name from the sideline "good job Renee, way to go, you can do it!" Yes I can.
When we were training for the race Crystal was my encourager, "way to go mom, I'm so proud of you." That really kept me going. Now it's my turn, "Way to go Sis, I'm sooo proud of you!" Your an awesome mom and wife and daughter and especialy a woman of God. Your going to do a great job as Olivia's mom too! And you have a whole bunch of people at your back. That's right, we are in this together. Crystal and Justus and Erik and I and Ken and Cherie, grandma's and grandpa's and brothers and sisters and extended family and friends. We can all train, be informed and strong, we must finish strong.
nformative and encouraging but Olivia still has HLHS and we are still going to have to deal with it. How do we do that? It seems so big.Today when I was talking to Crystal she reminded me, we're runners, we've run races together, we know how to train! Yes that's it, I need to start training. Last year Crystal and I ran, and finished, the Disney half marathon, 13.1 miles. Yes We Did! But to get there we had to run the Sun City 5k and the La Cresta 10k, and miles and miles in between, we trained...
Training for a run is not just running, it is actually mostly in you mind. (after Disney my quads would beg to differ) I subscribe to running magazines and running forums and running groups and..... yes I need a lot of encouragement, but once I get going its all great, in fact I love it, I love running through the pain, it gives me a feeling like no other, a feeling of strength.
So today I started training for Olivia, I went on the Internet and pursued knowledge, not like last week when I was so sad and scared but like a participant in this event. Yes it was a little painful but now I feel stronger, I know the terrain, as it were, of this event, I know how to train, we won't be running on flat streets for this one, this is an all out mud run. I need to be a strong partner for Crystal so I can encourage her when she is tired and weak. Just like the half marathon, when your so tired and wanting to quit someone calls your name from the sideline "good job Renee, way to go, you can do it!" Yes I can.
When we were training for the race Crystal was my encourager, "way to go mom, I'm so proud of you." That really kept me going. Now it's my turn, "Way to go Sis, I'm sooo proud of you!" Your an awesome mom and wife and daughter and especialy a woman of God. Your going to do a great job as Olivia's mom too! And you have a whole bunch of people at your back. That's right, we are in this together. Crystal and Justus and Erik and I and Ken and Cherie, grandma's and grandpa's and brothers and sisters and extended family and friends. We can all train, be informed and strong, we must finish strong.
2 Timothy 4:7I have fought the good fight, I have finished the race, I have kept the faith.
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